Setting Up a Special Needs Trust for a Disabled Relative

Many of us have a family member or close relativeseparate trust document, since the terms of the trust
with a disability. We'd like to leave a portion of ourwill be contained within the will itself.
estate to help this family member but are unsure howBecause the rules of each state vary as to whether
best to do this. Should we just make an outright gift?the terms of the trust will cause or not cause
What about a trust? Let's take a look at some of thedisqualification, you really must work with an
options.experienced estate planning or elder law attorney to
The simplest method of assisting the family member isdraft this trust for you. The attorney will be familiar with
an outright gift, either during lifetime or via our will.both the federal and state programs that might be of
However, if the disabled individual is already receivingbenefit at some point to your family member, what the
government benefits such as SSI (Supplementalrules are under both federal and state benefits laws,
Security Income) or Medicaid, additional assets couldhow trusts work, the different income and estate tax
cause them to become disqualified from thoseramifications of each trust option, and how best to
programs. On the other hand, some programs such asachieve your objectives.
SSDI (Social Security Disability Insurance) are notExamples of distributions that will not cause the
"means tested," i.e., are not affected by the assets orbeneficiary to lose or have reduced government
income of the recipient.benefits:
Since a person may not need to receive- new car
"means-tested" benefits today but may require them in- attorney/accounting services
the future, the safest route is to leave them your gift- alternative health treatments
inside a trust. The trustee of the trust will hold your- TV, DVD player
money, invest it, and distribute it to your intended- public transportation pass
beneficiary as needed, without causing disqualification- camera
from government benefits.- computer hardware, software, internet fees
Such a trust is called a Special Needs Trust or- courses and classes
Supplemental Needs Trust, since it is designed to- dental work not covered by Medicaid
supplement---and not replace---government benefits. It- fitness equipment
can be created today and funded with money or- musical instruments
other assets now. Such a trust is called an "inter vivos"- non-food grocery items
trust. You can serve as the trustee or permit- physician specialists not covered by Medicaid
someone else to serve as trustee; the trust can be- utility bills
revocable or irrevocable; and you can retain power to- physical therapy not covered by Medicaid
change the ultimate distribution of the trust assets or- vacations
not. All of these decisions affect the income tax andThe above is by no means an exhaustive list, but is
estate tax treatment of the trust. If you choose toonly intended to give you some idea of what your gift
make the trust irrevocable, then it will have its ownvia trust can be spent on to make your family
federal tax i.d. number and can be set up to be taxedmember's life so much better, without causing
either to you, the trust itself, or to the beneficiary.disqualification. As you can see, your gift will have
You can also set up the trust within your will, to bewide-ranging benefits for your family member and will
funded upon your death. Such a trust is called aimprove their quality of life for many years.
"testamentary trust." In this case, you will not have a